Rosemary's story

Rosemary was diagnosed with breast cancer in 2022. In 2023 she came to a wellbeing day at Penny Brohn UK which helped her to feel more connected with other people also affected by cancer.

My story

My name is Rosemary. I live in a small village in Northamptonshire.

I’m 53 years old. I live with my husband Alan and our three children: Laura, 24, James, 20 and Alexandra, nearly 18. We have a miniature labradoodle called Merlin, a cat called Sooty and one chicken called Bonnie. I work for a large Oxfordshire engineering firm – I love my job!

I graduated in 2022 from the Open University with a degree in Arts & Humanities and I found out I had cancer the day my last assignment was submitted.

I enjoy walking, pub quizzes, socialising, travelling and being with family and friends.

A picture of Rosemary

My diagnosis

My breast cancer diagnosis came after my three yearly mammogram at the end of April 2022. I received a letter asking me to go back for further tests. I told my husband but not my children as it wasn’t certain there was any problem, and I didn’t want to worry them as two of them were going through GCSE’s and A levels at the time. I wasn’t worried at all as I’d always been fit and relatively healthy – if a bit overweight. I was never ill. At hospital I was told I had some calcifications and that biopsies were required to discover more. Following a couple of biopsies and an ultrasound I was informed that I had two areas of high-grade ductal carcinoma in situ. Initially I was told I’d need surgery and five sessions of radiotherapy.

My first operation took place on the 20th July 2022. I had a breast reduction to the left breast. In hindsight I should have asked for a mastectomy but didn’t feel strong or well informed enough to argue. Results showed I needed further surgery to clear the margins as it hadn’t all been taken out the first time. My second surgery took place in September 2022. My diagnosis had now changed to G3 Invasive Lobular Carcinoma Ki-67 60% – and it was HER 2 positive although hormone negative. Due to the severity of the cancer and how quickly it had spread I was told I would need 6 cycles of chemotherapy and 10 rounds of radiotherapy followed by 18 injections of Herceptin every three weeks.

This news hit me very hard and my family were left wondering what on earth had happened, how had it spread so fast? Chemotherapy was a scary thought. I read up as much as I could on the drugs I would be having, and their side effects and I joined a local breast cancer group on Facebook for a bit of moral support.

My first chemo was on 22nd November 2022. I was very tired afterwards and sick for a couple of days before the effects started to wear off, just in time for the next cycle three weeks later. I had lost most of my hair by Christmas and decided to shave the remainder off. Before chemo I had long blonde hair halfway down my back. I missed it – and still do.

After three cycles of the first two drugs, I changed over to Docetaxel and Herceptin. The docetaxel made me quite ill. I’d been given plenty of pain relief to take but it didn’t help much. I was dosed up with steroids and had to take daily injections of Filgrastim to help my white blood cell count recover. I lost the sense of taste and developed mouth ulcers and had frequent nose bleeds. All my fingernails and toenails fell off and the skin on my hands and feet peeled off and I also developed trigger finger in the fingers of both hands.

My final chemo cycle took place on the 10th March 2023. A date I will always remember! I was then on the road to radiotherapy which started with a CT scan and tiny tattoos to make sure the beams were aimed correctly. I had five fractions followed by five boosters to the tumour bed. My Herceptin injections are expected to continue into Spring 2024. My mammogram in April 2023 showed no evidence of disease. The treatments have worked – at least for now. I must be vigilant and report anything untoward and I will be closely monitored for the next few years.

Support I received

I was overwhelmed with love and support from family, friends, colleagues and NHS staff but still felt very alone for some reason. I am not very good at asking for help. People would always say to me ‘call if you need anything’ but I never would. The local group I had joined were mostly focused on Northampton and the towns the other side of the county to where I live. We do not have a ‘Maggie’s’ centre in Northamptonshire yet, so I contacted the one in Oxford for some help and advice. They put me in touch with Penny Brohn UK at the end of June 2023 so I came to it quite late on which is a shame as I could have really done with knowing about it last year when diagnosed.

A quote from Rosemary with a picture of her next to it

Penny Brohn UK

I had a look at Penny Brohn UK’s website, and everything looked and sounded so lovely. I noticed the wellbeing days and promptly booked myself onto one. It was a few months away, but I looked forward to it immensely and wasn’t disappointed when the day finally arrived. I was greeted warmly and made to feel right at home along with the others who had come for the same day as I had. It was amazing to finally be able to talk to others who knew what I was on about, we all had stories to share and similar experiences. Some were still going through active treatment like me and some were at the beginning of their journey and others had been through it all years ago but were there to offer support and advice – amazing! I wish I had known about Penny Brohn UK sooner, they do amazing work and have amazing facilities.

I came away from the day feeling like I could take on the world! I knew I wasn’t alone. People seemed genuinely interested in me and my story and it was nice to feel empowered enough to ask others about what they have been through. Cancer seems to be such a taboo subject with many stereotypes associated with it. The more it can be talked about openly – and not with the pitying looks you sometimes get when you go out without a hat or wig on or with your PICC line showing out the sleeve of your tee-shirt – the better!

I’m hoping to be able to use some of Penny Brohn UK’s online resources in the future. I have bought a nutrition book from their shop as I have been told I am pre-diabetic and have high blood pressure. I’m hoping to start horse riding again next year – that is the main thing I’m looking forward to as well as taking more trips with my family and friends and making many more good memories.

If it wasn’t for Penny Brohn UK – I’d be still feeling a bit lost. I am nearing the end of active treatment and the future without regular catch ups with my oncologist and the team at NGH is a bit daunting.

Knowing Penny Brohn UK is there is a great comfort – even when this part of my story is over, I know they will still be there if I or anyone I know may need them. Thank you for everything you do.

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